Engage Aotearoa

Category Archives: Engage Updates

The Butterfly Diaries Volume 1: Launch & Order Details

The Butterfly Diaries Volume 1 is a FREE book of inspiring stories and personal tips from four people who have recovered from the experience of being suicidal.

Launch Details:

NOTE: Event Moved to Sunday 13th of October due to rain forecast for Saturday the 12th. 

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Engage Aotearoa will be launching The Butterfly Diaries Volume 1 at Fiesta in the Park on the 13th of October for Mental Health Awareness Week. Come along to the free public concert and pop into The Butterfly Diaries Tent – a quiet corner covered in white paper butterflies where you can stop by to decorate a butterfly with a survival tip of your own, pick up a copy of the book, relax with a copy in the reading corner or listen to the authors and editors read from the book.

  • Where: Fiesta in the Park, Western Park, Ponsonby, Auckland
  • When: From midday Sunday 13 October 2012
    Reading Times:
    12:30 – 1:00 pm Michelle Bolton reads from Breathe and Breathe and Breathe by Phoebe Wright
    1:30 – 2:00 pm Owen Bullock reads from Enough Angels
    2:30 – 3:00 pm Miriam Larsen-Barr reads from Welcome to Today by Henrietta Bollinger
  • 3:30 – 4:00 pm Raewyn Alexander reads from Emerging from the Past, Transformed

The Butterfly Diaries, Volume 1
Four true stories of transformation told by four New Zealand writers.

  • Stories by Raewyn Alexander, Henrietta Bollinger, Owen Bullock and Phoebe Wright.
  • Foreword by Mike King
  • Edited by Miriam Larsen-Barr and Michelle Bolton

In Aotearoa, New Zealand, 1 in 6 people have suicidal thoughts each year. It is a normal human response to feel hopeless sometimes. It takes a great deal of distress tolerance, brute determination, skill development, support and understanding to survive the urge to act on those thoughts and feelings when they arise. But hardly anyone ever talks about suicidal thoughts and feelings, making it even harder for people to find out how to get through. The Butterfly Diaries gives voice to the stories of those who have been there and made it out alive. Sean, Jane, Mary and Brad have all been suicidal, survived their own suicide attempts and found their way to a place where they are glad to be living their lives. In The Butterfly Diaries they share how they strengthened their wings and learned to fly.

The first edition of The Butterfly Diaries Volume 1 will be placed in high-schools and GP waiting rooms across the NZ, to make recovery stories easy to find. Suicide rates peak among youth and most people who are suicidal visit a GP in the months leading up to making an attempt, even if they do not talk about how they are really feeling.

How to Order Copies

You can nominate a service or person to receive a copy of The Butterfly Diaries or order a copy for yourself by making a donation on the Engage Aotearoa website to cover the cost of posting your book. Just fill in your details and give the delivery address in the space provided. The minimum donation is set at NZ$2.50 (the cost of NZ postage and handling). A donation of $5 will get a copy posted for you and cover the costs of printing a copy for someone else.

Click here to order a copy of The Butterfly Diaries

Contact Engage Aotearoa for more information

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Want to help prevent suicide in NZ?

You can help get more copies of The Butterfly Diaries out there for people to read. Sponsor a print run by making a donation on the Engage Aotearoa website.  Every donation over $5 is tax deductible. A $20 donation pays for eight more books. A $500 donation prints enough books for a small school. 

The Victory Fashion Parade | Whangarei | 28 Sep 2013

When Engage Aotearoa visited Whangarei with Mike King and Key to Life for the Community Korero earlier this year, the team met a wonderful woman named Vicky Flavell who wanted to put her passion for fashion design behind a good cause.

The Victory Fashion Parade brings together designers from the Far North for a night of style, with all proceeds going towards Engage Aotearoa’s project to get printed copies of The Community Resources Directory and The Butterfly Diaries out into communities across the country. Making help easy to find when people are struggling is an important part of preventing suicide in NZ. Now, the people of Whangarei can help make that happen just by enjoying a good night out with their friends.

  • 6 pm, Saturday 28 September 2013
  • Toll Stadium, Whangarei
  • Tickets $40
  • Contact no. 021 144 6080

Victory Fashion Parade Whangarei 28 Sep 2013

 

 

Service-User shares Open Letter to their Psychiatrist

Engage Aotearoa has received an open letter to share from a member of the community who has been using one of the Community Mental-Health Services in Auckland. The letter will be read in a week or two to the clinician involved. But they wanted to share their thoughts further than that.

It is sad to admit,” says service director, Miriam Larsen-Barr, “but we know the experiences of disempowerment and lack of choice highlighted in this letter are rather widespread. We receive regular emails from community members informing us of similar experiences. People don’t want to complain. They want to be heard, valued, respected, listened to and worked with, not worked on. Perhaps if we bring our voices together and get behind each other more we can help turn that balance of power around.

Open Letter to a NZ Psychiatrist

Dear Doctor

I have written you this letter because every time I attempt to express myself while inside the walls of a mental health facility my words dry up. I choke on my frustration, I sigh at the futility of trying to explain myself to people who have never understood me and I give up. Instead I have put into words well in advance what I want to say to you, so that the message comes across clear. I have written the words down so I can read them calmly, and you will hear them not as mania or psychosis or the rant of a lunatic, but so you will hear them as a carefully prepared statement, and maybe just a few will sink in.

Let me begin by discussing my views on psychiatry in general, so that you understand I have no respect for anyone in your position. I admit, it’s true I have a personal prejudice against psychiatrists, so it would have been hard for you to earn my respect. Here’s why. I think that the entire history of psychiatry has done more harm than good. I think that psychiatry today does more harm than good. You forcefully medicate and detain people against their will, and you claim it helps them. You habituate people to substances which you have absolutely no idea how to help them discontinue. And you repeatedly ignore our service user requests for our own courses of treatment, while claiming you know better because of your education. You think you have a better knowledge of what’s good for me than I have for myself. And you think it because you’re sure you’re better than me in some way, less broken, more together, or more sane. You think my history proves I’m infantile or incapable, and your first and most strong desire is to convince me and make me accept I’m infantile and incapable. Every psychiatrist I have ever seen has been a broken record, and every time I’ve asked for help to meet my own health goals, I’m told I have the wrong goals.

So now I have to come to you personally, doctor. The first memory I have of our meeting, I remember you telling me that because of my history, it seemed obvious to you I would need medication for the rest of my life. Do you tell this to every service user the first time you meet them, Doctor? I’m glad my file is so complete and reliable that you can come to a conclusion about me and the rest of my life based on a few notes that other people have written about me. It’s a bit of a pity that my hopes, dreams, desires, wishes and aspirations don’t come into it at all.

It’s also a pity that you don’t share the rest of your expertise with your patients. Surely you learned something in all that time at university about diet or exercise or meditation or mediation or self-awareness, or in fact any way to flourish other than taking a happy pill. You must have some knowledge from your personal experience of dealing with distress or family members in need. You must have some idea about how to address the skeletons in my closet in a friendly and welcoming environment with someone I feel I can talk to.

Because if you don’t have any advice for me other than what the brand of the day is from the pharmaceutical company who gave you that free pad to write on and coffee mug to drink out of, I really am sad. Because you might as well be a pill vending machine. And maybe one day, when you’re a little older and wiser, you’ll count the years of time you stole from your doped up patients, not to mention the years you took off the end of their lives, and you might feel a little sad too.

Sincerely Yours

Engage Group Enrolling for 4th of September Start Date

Engage Group is a 10-week anxiety  education and support programme that has been helping Kiwi men and women understand and overcome their anxiety experiences since 2008. Enrollments are now open for the last group for 2013.

It is free for anyone to join and almost anyone over 18 is eligible to take part.

Group starts on the 4th of September and runs weekly on Wednesdays from 4-6 pm until the 6th of November. Numbers are limited to 10 max and spaces are filling up fast.

Click here to find out more and read the Engage Group Information Pack.

Engage Group 4 Sep - 6 Nov 2013

Mike King Korero Heads to Taranaki Region in September

Mike King and Tai Tupou are hitting the road again in September to encourage schools and communities to make it cool to korero about the tough stuff, so we all make it through.

  • 10 September, 1 pm, Cool to Korero, Francis Douglas College, New Plymouth
  • 10 September, 7:30 pm, Community Korero, War Memorial Hall, Stratford
  • 11 September, 7:30 pm, Community Korero, Waves Building, New Plymouth
  • 11 September, 12:30 am, Cool to Korero for Hawera High and Patea Area School, The Hub, Hawera
  • 12 September, 11:30 am, Combined Community Cool to Korero, Opunake College, Opunake

While the team at Key to Life are getting ready to hit the road, the team at Engage Aotearoa will be adding recovery resources from each of these towns to The Community Resources Directory, so they can be delivered to those who need them when the team hits the ground in each of their locations across Taranaki. If you know of any services in the Taranaki region you think others would find useful, email them in.

Funding Cuts to Talking Therapies Hits the News

The NZ Herald has reported growing community concern over increasingly restricted funding for talking therapies across the country. Click the headline below to read the full story.

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Alarm Over Depression Therapy Cuts – NZ Herald, 29 July 2013

Major insurance providers, Sovereign, have disclosed they will only fund medication and exercise as treatments for depression in future, given the cost associated with talking therapies and the number of people who need them.

In the article, Mike King of The Nutters Club and Key to Life Charitable Trust comments “I can say from experience that talk therapy absolutely works. But few people can afford it. We don’t need less talk therapy. We need to be working with the Government and insurance companies to find ways for more people to get affordable or free therapy.”

A representative from Sovereign insurance states that antidepressants are “proven to work” and uses an example of a person who is only mildly depressed following a period of unemployment as a time when talking therapy would be considered unnecessary and antidepressants considered sufficient. “This shows a misunderstanding of the research,” says Engage Aotearoa service director, Miriam Larsen-Barr, “antidepressants have been shown to be effective only at the severe end of the spectrum. People with mild to moderate symptoms can most definitely be helped with talking therapy and are much more likely to respond positively to that than antidepressant medication. People tend to have these experiences for a reason. Talking therapies help people address those reasons in ways that medication alone cannot, for all that it has its place and uses.” 

One might argue that restricting treatment choices to medication or exercise alone limits service-users’ ability to make the best recovery choices for them or freely give their informed consent – choice is considered a fundamental part of consent and choice requires multiple options. This is reflected in the Health and Disability Commissioner’s Code of Consumer Rights. In the recent Partnership Report from Changing Minds, service-users specifically call for a greater range of choice when it comes to their recovery. The NZ Herald article has already inspired much debate.

Comments on Facebook posts sharing the article are calling for some kind of action to address the issue of funding for talking therapies. Funding for therapy has been an issue for quite some time. Improved access to talking therapies was one of the requests made in the Petition for Better Mental-Healthcare Choices that was delivered to parliament in June. The Health Select Committee will be meeting to discuss the petition in the next month or two, but have yet to release the date of their meeting. If you are passionate about this issue and want to add your voice to those calling for better access to the things that work, email your submission to the chairperson of the Health Select Committee Paul Hutchison at  paul.hutchison@parliament.govt.nz or contact your local MP. 

 

CMHRT Welcomes New Board Members

Community Mental-Health Resources Trust (CMHRT) have elected four new Trustees to the board that sits behind the Engage Aotearoa website. The board now has nine trustees and is looking forward to what the future will bring. 

Meet the New CMHRT Trustees:

Taimi Allan is known for her high quality work on New Zealand’s ‘Like Minds, Like Mine’ programme, for the creation of reTHiNK, for her role at Mind and Body Consultants, as an expert speaker on social media for suicide prevention and as being a pragmatic and diplomatic policy advisor. As a leader in the field of mental health in New Zealand, Taimi is a highly sought after presenter, with measured success in reducing stigma and discrimination through innovative health promotion strategies including tailored education and training packages, social technology, media communications, entertainment and event production.

Emma Edwards holds a BA (Hons) in Psychology (University of Otago) and MSc in Health Psychology (University of Auckland). She is currently completing her Doctorate. Emma worked in the mental health field for approximately 4 years at the NGO Recovery Solutions (formerly Challenge Trust). She held roles as a support worker and then a DAPAANZ registered mental-health professional at a residential intensive rehabilitation service. Emma then became the Service Coordinator and established a new youth respite mental health service. When she began her doctorate, Emma worked as a trainer for Recovery Solutions, facilitating trainings and advising staff. Emma has service-user and family experience with mental health struggles and is passionate about working hard to impact mental health perceptions, policies, and resources on a larger scale.

Dean Manly has a background in supported employment, project research and writing, strategic planning, delivery and evaluation, and NGO Governance. Dean graduated from The University of Auckland Faculty of Arts with a MA (1st Class Hons) in 2000. His Doctor of Philosophy Research (2009) investigated representations of mental-health problems in cinema in order to examine the myths and assumptions shared by the popular culture media. He found stereotypes of the ‘Other’ are coded into western culture images and narratives. This was especially true for disenfranchised or marginalised groups othered by society. Dean is known for roles as National Manager of the Like Minds, Like Mine Project for the Mental Health Foundation of New Zealand and previous chairperson of the Council for Mental Wellbeing Trust (now Changing Minds).

Sheree Veysey is a counsellor and trainer who was initially drawn to working in the field of mental health through her lived experience of mental unwellness. She is passionate about people finding their own unique recipes for wellbeing and recovery which attend to the whole person and their situation. She has a Masters of Social Practice, Bachelor of Communication Studies and is a provisional member of the New Zealand Association of Counsellors. Sheree is also a writer and musician, as well as an adoring auntie and dog owner.

Engage Community Resources Directory Updated 3 July 2013

The Engage Community Resources Directory has had another round of updates added, including…

  • A Psychiatrists Section that lists most of the community mental-health services in the country
  • More Crisis Teams
  • Rotorua, Tokoroa, Hamilton therapists added
  • Plus other services that have been sent in from community members. Keep them coming, guys!

The information manager at Engage Aotearoa still has stacks of services waiting to be added, so keep an eye out for next month’s update. As usual, there is so much more waiting to be shared.

Visit The Community Treasure Chest to check out your own copy of The Community Resources Directory.

 

A 1970s Teacher Gives Her Class a Lesson They Won’t Forget

If you have an interest in issues like self-worth, stigma, discrimination and equality, you might like this video of one teacher’s experiment with her 3rd Grade classroom for National Brotherhood Week in the 1970s (might be earlier – it’s hard to tell). This is one of those old experiments that would never get through a modern-day ethics committee, but that nonetheless teach us a lot about what it is to be a human being in the world.

Upworthy writes:

“1:30: This teacher begins a study that will be talked about for 40 years.
3:00: She re-creates segregation and racism in her classroom.
7:45: Mrs. Elliott flips the entire class on their heads.
10:00 Jane Elliot makes the most profound discovery about us all
11:43: The students learn something that the world is still struggling to. 
There are too many great moments to point out. Just watch.”

New Research Burst: Lots of Great New Articles Out Online

New Research from Psychosis Online

Psychosis has just published a bunch of new research articles online, one of which has the Engage team buzzing because it backs up our transdiagnostic approach by providing another piece of proof that people with psychosis have some of the same underlying traits that people with anxiety and depression have. Maybe when we see beyond what the experiences look like from the outside, different mental-health problems are not so different underneath it all.

Developmental pathway to paranoia is mediated by negative self-concept and experiential avoidance
Alisa Udachina & Richard P. Bentall
DOI: 10.1080/17522439.2013.810301
Psychosis: Psychological, Social and Integrative Approaches

Madness contested: power and practice
Sami Timimi
DOI: 10.1080/17522439.2013.806572
Psychosis: Psychological, Social and Integrative Approaches

Family intervention for psychosis: impact of training on clinicians’ attitudes, knowledge and behaviour
Jacqueline Sin, Steven Livingstone, Maria Griffiths & Catherine Gamble
DOI: 10.1080/17522439.2013.806569
Psychosis: Psychological, Social and Integrative Approaches

Psychosis and poverty coping with poverty and severe mental illness in everyday life
Alain Topor, Gunnel Andersson, Anne Denhov, Miss Sara Holmqvist, Maria Mattsson, Claes-Göran Stefansson & Per Bülow
DOI: 10.1080/17522439.2013.790070
Psychosis: Psychological, Social and Integrative Approaches

Positive effects of a novel cognitive remediation computer game (X-Cog) in first episode psychosis: a pilot study
Majid M. Saleem, Michael K. Harte, Kay M. Marshall, Andy Scally, Anita Brewin & Jo C. Neill
DOI: 10.1080/17522439.2013.791876
Psychosis: Psychological, Social and Integrative Approaches

Book Review: Hearing voices – the histories, causes and meanings of auditory verbal hallucinations, by Dr. Simon McCarthy-Jones
Adèle de Jager
DOI: 10.1080/17522439.2013.806571
Psychosis: Psychological, Social and Integrative Approaches

New Research from BMC Psychiatry Online

Research article    
Understanding psychiatric institutionalization: a conceptual review
Chow W, Priebe S
BMC Psychiatry 2013, 13:169 (18 June 2013)
[Provisional PDF]

Research article    
Frequency and relevance of psychoeducation in psychiatric diagnoses: Results of two surveys five years apart in German-speaking European countries
Rummel-Kluge C, Kluge M, Kissling W
BMC Psychiatry 2013, 13:170 (18 June 2013)
[Provisional PDF]

Research article    
Trauma-focused treatment for posttraumatic stress disorder combined with CBT for severe substance use disorder: a randomized controlled trial
van Dam D, Ehring T, Vedel E, Emmelkamp PM
BMC Psychiatry 2013, 13:172 (19 June 2013)
[Provisional PDF]

Research article    
Promoting recovery-oriented practice in mental health services: a quasi-experimental mixed-methods study
Gilburt H, Slade M, Bird V, Oduola S, Craig TK
BMC Psychiatry 2013, 13:167 (13 June 2013)
[Provisional PDF]

Research article    
Prevalence and sociodemographic associations of common mental disorders in a nationally representative sample of the general population of Greece
Skapinakis P, Bellos S, Koupidis S, Grammatikopoulos I, Theodorakis PN, Mavreas V
BMC Psychiatry 2013, 13:163 (4 June 2013)
[Provisional PDF]

Research article    
Association between psychiatric disorders and iron deficiency anemia among children and adolescents: a nationwide population-based study
Chen M, Su T, Chen Y, Hsu J, Huang K, Chang W, Chen T, Bai Y
BMC Psychiatry 2013, 13:161 (4 June 2013)
[Provisional PDF]