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Tag Archives: Autism Spectrum Disorder

Navigating autism as a couple: the university journey

Cameron is a kiwi guy who was diagnosed with autism in adulthood. He and his wife Kirsten write regular blogs about their life navigating autism as a couple. Their blog lets you follow their journey from seeking out a diagnosis, making sense of it, and working through the challenges autism presents. One of the things I love about this blog is that we get to hear from both Cameron and Kirsten as they welcome us into their struggles and small victories. In their latest blog post, they celebrate Cameron receiving his university diplomas and reflect on all it has taken to get there (this involves a bit of swearing, which is not surprising given the challenges he faced).

For me, these experiences really highlight the importance of accurate diagnosis and access to appropriate accommodations within our education settings. If you are autistic or experience other forms of neurodiversity like ADHD, and you are studying or preparing to study, it is vital that you know you can find support for your learning from your university’s disability office. All educational settings are required to have some form of support in place and you have a human right to ‘reasonable accommodations’ to ensure you can take part to the best of your ability.

Cameron didn’t have a diagnosis at the time he was studying, and describes just how distressing the process of misdiagnosis ultimately was for him. You could argue that it was the stress of misdiagnosis that prevented him from completing the degree he had initially planned for himself, rather than the challenges of autism itself. Because of course, if we don’t know what it is really happening to us, it’s incredibly difficult to know what we need and what is going to help. And there are plenty of things that can help. It is possible to plan a reduced course load, more time to get course-work done, reader-writers for note-taking, exams and tests, assistance in labs, support to educate your teachers, and all sorts of other things to help make it easier to manage the challenges you face and successfully pursue further education without placing yourself under undue levels of stress and distress. Sometimes it takes an advocate or two to access these accommodations and Kirsten gives us an inspiring example of the difference it can make when people have someone to stand beside them in this way.

Follow Cameron and Kirsten at Help My Husband Has Asperger’s and read their latest post here My Train Finally Arrived at Alumni Station!

Alyssa’s Autism Acceptance Project

I recently discovered Alyssa’s Autism Acceptance Project online in a blog post by the project creator herself, Alyssa Bolger and her brother Lachlan, two teenagers on the autism spectrum on a mission to change their little corner of the world for the better. They are based in Australia but I found their story really inspiring and think you will too. I love solutions created by the people they are designed to serve. Insider knowledge is a special thing and it always seems a bit like finding treasure when I come across something like this. As a clinician, research is one thing, but it’s never quite as powerful as knowing real life examples of people doing well and what it’s been like for them. There’s a term for this, ‘the power of positive contact’ and it’s a key ingredient for creating accepting communities. This project has that in spades. You can find Alyssa’s Autism Acceptance Project and follow her family’s journey on Facebook at www.facebook.com/TheAAAProject/

Alyssa and Lachlan’s article on Reframing Autism gives us a real life example that totally busts the common myth that people on the autism spectrum aren’t interested in friendship and shines the light on the barriers that get in the way. All humans need friendship including people on the autism spectrum.

Alyssa and Lachlan write, “My name is Alyssa, and my younger brother is called Lachlan. We are both proud autistic teenagers and we are writing this post together (with a little help from our autistic parents), because we want everyone to know how important friendship is to us, as we know there are Neurotypicals out there who think autistic people don’t care about having friends.”

They go on to explain, “Lachlan and I have learned that making friends is all about having something in common. That’s why we started our Lego club called BrickTime a few years ago. It’s a safe place that’s seen lots of friendships, because of a common love of Lego. Some of the Lego builds have been amazing! We were even going to organise an exhibition to show off these builds, but COVID-19 put a stop to that. Hopefully, we’ll get to do it one day.

Along with BrickTime, the other thing we do as the AAA Project is travel to schools to talk to kids about autism. We started doing this because of a message that I received while I was the Telethon kid back in 2015. A young autistic girl (who was so happy to discover that she wasn’t the only autistic girl through seeing me on TV) sent a message to ask if I would be her friend. She said she didn’t have any friends in her small country town, because nobody ‘got her’. I would have loved to have been her friend but, unfortunately, I had no contact details for her (and I didn’t even know her name). So, we set off travelling around WA, in the hope that we might find her. We talked to kids from schools as far south as Albany and as far north as Kununurra. Lachlan and Dad did all the behind-the-scenes tech stuff, and Mum and I did the presentation.”

Read the full story here: Building Friendships Brick by Brick, by Alyssa and Lachlan Bolger on the Reframing Autism website.