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Category Archives: Newsletters

Stigma Busting Stories in the Like Minds Newsletter Dec 2012

The December 2012 issue of the Like Minds Newsletter is available online.

The feature article investigates how blogging can help to reduce stigma and discrimination – according to avid bloggers and tangata whaiora, Cate Reddell and Jarno Noordermeer.

Guy Baker tells how sharing his personal story of mental illness has brought him much support from his work colleagues at the Gisborne District Council.

Recent initiative PeerZone is receiving positive feedback about its workshops and is hoping to hold training for facilitators in Australia in 2013.

Auckland artist Andrew Serjeant talks about his art and belief that people with experience of mental illness can contribute greatly to society.

Sheree Veysey gives the lowdown on her Master’s thesis that focuses on how stigma may operate in the complaints process within mental health services.

Kaumatua Kathy Stewart leads you through her story about how she found strength and recovery in helping others after years of depression.

New Year Updates Out From Changing Minds

The latests newsletter is out from Changing Minds (previously Regional Consumer Network/RCNet).

Read the Changing Minds Newsletter online here

Changing Minds provides information about events, jobs, workshops, and research in relation to mental health issues and addictions in the Auckland region,  and welcome your feedback and contributions.  

To contribute to future mailouts contact the editor


Glenn Inquiry into Domestic Violence and Child Abuse Seeks Community Input

In July last year Owen Glenn announced that he would fund an independent inquiry to establish why domestic violence and child abuse remains such a major problem in New Zealand and to identify what needs to be done to address this issue.

If you have personal experience of child abuse or domestic violence or work with those who do the Glenn Inquiry team would like to hear from you!

Visit their newly launched website for more information at www.glenninquiry.org.nz

Follow the link below to check out the first newsletter from the Glenn Inquiry https://glenninquiry.org.nz/uploads/files/TheGlennInquiry_Newsletter.pdf



Latest Issue of Chatters from Crossroads Clubhouse

Chatters is the newsletter from Crossroads Clubhouse in Grey Lynn, Auckland. Click here to read the Nov-Dec 2012 Issue of Chatters and find out what’s been happening at this awesome community resource for people who have experienced mental health problems.

Newsletter from The New Zealand Organisation for Rare Disorders

NZORD – the New Zealand Organisation for Rare Disorders

NZORD Newsletter 2012 #6 — 28 November 2012

In this issue:

1 – Putting patient and family interests into newborn screening criteria.

2 – Common themes as groups respond to Ministry consultation on payments to family carers.

3 – Two significant clinical trials with New Zealand connections.

4 – Plain packaging submission to Ministry of Health tobacco control team.

5 – Recommended reading: The Immortal Life of Henrietta Lacks, by Rebecca Skloot.


1 – Putting patient and family interests into newborn screening criteria.

Over a decade of NZORD’s advocacy for patient and family interests in health policy has taught us that talking the language of officials and professionals is an important step in having our messages taken seriously. So NZORD took the lead in publishing how family interests and ethics must influence screening policy. See Screening criteria: the need to deal with new developments and ethical issues in newborn metabolic screening. We are proud to have the valued support of the Save Babies Through Screening Foundations in the USA and UK, and the Genetic Alliance in the USA, in the preparation of this article, along with valued help from two New Zealand academics with editing and technical aspects.

The article is published online in the Journal of Community Genetics, October 2012. We propose that decision criteria for metabolic screening in the newborn period should be adapted to specifically include patient and family interests, community values, patients’ rights, duties of government and healthcare providers, and ethical arguments for action in the face of uncertainty. Here is an open access PDF version of the article.

2 – Common themes as groups respond to Ministry consultation on payments to family carers.

The Ministry of Health’s consultation on payments to family carers has now closed and decisions will be made over the next few months. Wide ranging discussions took place among support groups during the consultation period and there was widespread concern at themes contained in the Ministry’s document.

NZORD is concerned that the Ministry’s defeat on this issue at the Human Rights Review Tribunal, and in two major court cases, has negatively influenced the policy direction they are signalling, and even suggests an attempt to relitigate the case through the policy setting process. This is very disappointing. Family carers deserve a more respectful process that is based on sound principles. Read more about a better approach to this policy issue in the submissions made by the Carers Alliance and also by NZORD.

3 – Two significant clinical trials with New Zealand connections.

Possibly missed by many in the constant stream of news about research activities under way, is a planned new clinical trial by NZ-based Neuren Pharmaceuticals who specialise in drugs for brain injury and neurodegeneration. They have successfully completed a phase 1 safety trial and submitted for approval of their candidate drug NNZ-2566 for a phase 2 trial for Rett syndrome, a very rare neurodegenerative condition. It is exciting to see such projects emerging from New Zealand universities, and also great to see attention being paid to rare conditions. Read more in the Neuren press release.

Also this month, Living Cell Technologies received approval for a clinical trial of its porcine cell encapsulation technology for the treatment of Parkinson’s disease. This follows successful earlier trails of the same technology for the treatment of unstable diabetes. Read more about the ongoing diabetes trial. This is another project where the innovation and basic research originated in New Zealand.

4 – Plain packaging submission to Ministry of Health tobacco control team.

NZORD supports the introduction of plain tobacco packaging and the other recommendations set out in the proposal under consultation by the Ministry of Health. We support this proposal because the health outcomes of tobacco use, exert an indirect but significant impact on the rare disease population. Smoking is a significant risk factor for a range of diseases that are high on health priority lists and therefore take a significant slice of the health budget. As a result, patients with rare diseases are pushed further down the priority list. Here is our submission in Word and PDF.

5 – Recommended reading: The Immortal Life of Henrietta Lacks, by Rebecca Skloot.

Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions.

Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.

Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences. Read more about Henrietta in Wikipedia. The book is available at Amazon.


John Forman

Executive Director, NZORD

New Zealand Organisation for Rare Disorders

PO Box 38-538, Wellington Mail Centre, 5045

228 Tinakori Rd, Thorndon, Wellington, 6011

New Zealand

Ph +64 4 471 2226

Mob +64 27 240 3377

Email: exec.director@nzord.org.nz

Website: www.nzord.org.nz

November Changing Minds E-Newsletter

Changing Minds E-News Out Now

In the November Issue

  • Changing Minds Film Festival
  • Awareness Campaign
  • Blueprint ii Survey
  • Rising to the Challenge
  • MediaWatch & Stigma Watch
  • Changing Minds Forum
  • Vacancies
  • Events and Meetings
  • Helpful Links

UK Expands Definition of Domestic Violence

New UK domestic violence definition includes coercive control

The UK Home Office has announced it will expand the definition of domestic violence to include ‘coercive control’ and to cover people 16 years of age and older.

The change is to the official definition of domestic violence used across government not the legal definition.

The expansion of the definition to cover 16 and 17 year-olds came after the British Crime Survey 2009/10 found that 16-19 year-olds were the group most likely to suffer abuse from a partner.

Link to further info on the NZFV Clearinghouse website: http://www.nzfvc.org.nz/node/793

_ _ _ _ _

Thanks to the North Shore Family Violence Prevention Network weekly E News for passing this information on. Sign up to receive their E-News directly by emailing fvpnns@gmail.com 

Heyday Issue #2 Out Now from Youthline

Issue#2 of Youthline’s online youth magazine, ‘Heyday’ is out now!!!

It’s jam-packed with inspirational articles about young people achieving great things, celebrity Q/A’s, career profiles, an ‘unzipped’ section and a whole heap more!

Please click here to read it.

If you have Facebook please visit Youthline here and help promote the magazine by sharing it with your friends.

If you are interested in contributing to Heyday please email Amanda: awatson@youthline.co.nz

SPINZ Newsletter August 2012

The latest issue of the SPINZ Newsletter is now available in PDF or web page format. This issue focuses on diverse communities, and we bring you a range of stories about initiatives, services and research supporting suicide prevention across New Zealand.

Links in this contents list take you to their web pages:

Let’s talk about inclusion – Sam Orchard is Rainbow Champion at Affinity Services – find out what that means and why it’s important.

A farmer’s story – After losing a friend to suicide, farmer Stu Richards opens up about loneliness and farming pressures. We talk to three agencies working to make sure guns in rural communities are used safely.

Computer game as good as counselling for depressed youth – A team of Auckland University experts is finding success in its SPARX e-therapy for depressed teens.

Reporting Suicide: avoid simple explanations – We encourage journalists to put suicide stories in context and educate the public about how to help.

Everyone has a role in Asian suicide prevention – Malaysian-born Ivan Yeo explains how we can all take part in reducing suicide risk in our communities, and we profile our Chinese-language resources.

Watering the young taro shoots – Cook Islands Māori psychologist Dr Evangelene Daniela describes her four-part approach to working with Pacific families.

Māori experts speak – We profile a collaborative project that collected the kōrero of experts in Māori suicide prevention.

New books & research – Latest research and books available from the Mental Health Foundation Resource & Information Service.

Latest RCNet Update is Live Online

Click here to read the latest update from RCNet (Soon to be Changing Minds).